By Professor Michael Waterstone
Would you be comfortable taking a genetic test to see if you had a genetic predisposition to certain diseases? Even if your doctors tell you it might be medically useful, would you be concerned that the results might somehow come back to harm you? Perhaps your employer might find out the results, and, depending on the results, worry about your future productivity? Or would you be concerned that your insurance company could find out and use this information to raise your health insurance rates?
Ninety percent of Americans feel that taking genetic tests leaves them open to this type of genetic discrimination. In response to these fears, and based on the observations of doctors that patients were not getting genetic information for medical purposes and not participating in research studies, Congress passed the Genetic Information Discrimination Act ("GINA"), which prohibits discrimination on the grounds of a person's genetic information in employment and in the provision of health insurance. Although GINA has been on the books since 2008, a recent survey found only 16 percent of people surveyed knew its protections existed. As in all areas, law takes time to work its way into culture.
I recently attended a conference in Ireland on the need for a European framework to deal with the problems of genetic discrimination in Ireland, cosponsored by the Centre for Disability Law and Policy, National University of Ireland, Galway and the Burton Blatt Institute at Syracuse University. The audience was academics, policymakers and government officials. The chair was Justice John McMenamin of the Irish High Court, and Marian Harkin, a member of the European Parliament, was in attendance. The conference got a nice write up in the Irish Times.
Tags: Disability Rights, Employment Law, Privacy


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KPCC's Madeleine Brand Show will be covering the first year out of prison for Obie Anthony, the client for whom Loyola's Project for the Innocent secured a release on Oct. 4 after working on his claims since 2008. Students, under the direction of Professor Laurie Levenson and post-graduate fellow Adam Grant, drafted habeas claims and interviewed witnesses. Most recently, students participated in a September evidentiary hearing.

We don't yet know the electoral impact of Citizens United. The decision gave us a new wave of SuperPAC entities flaunting their new SuperPurchasingPower. But before Citizens United (excepting the 2002-2007 stretch from McCain-Feingold to Wisconsin Right to Life II), nonprofits could freely advertise that "Candidate Smith Hates Puppies," and could raise plentiful corporate money to do so. Citizens United removed only the additional ban on an explicit exhortation, of disputed incremental value, to vote the puppy-hater out. The difference is not insignificant: corporations can now strut, rather than slink, to the political marketplace. That makes fundraising easier and funding pools larger. Ultimately, though, these SuperPACs may represent merely a new vehicle for some very old influence.
Citizens United has already had a deleterious affect on the electoral process. Public outrage surrounding the decision has only grown as corporations and moneyed interests have set up a shadow campaign finance system. Corporations can now give and spend nearly unlimited sums to help elect preferred candidates or defeat candidates they see as less favorable to their interests. Individuals increasingly feel that they cannot affect the outcome of electoral processes. Individual voices are being drowned out by the giving and spending of unlimited sums of money in the political marketplace. As a result voters feel disengaged in our representative democracy. The erosion of public confidence in a representative system of government is deadly serious.
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